Trial to test scleroderma treatments at earliest stages of disease
Posted on
July 29th, 2026
Indero, World Scleroderma Foundation partner to treat SSc before organ damage Written by Steve Bryson, PhD | June 30, 2026 A clinical trial will study investigational therapies in people at the earliest stages of systemic sclerosis (SSc), before irreversible organ damage has occurred. Contract research organization Indero and the World Scleroderma Foundation (WSF) are partnering on
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Off-the-shelf cell therapy shows early promise as scleroderma treatment
Posted on
July 29th, 2026
Gains seen for first 4 people with hard-to-treat disease in large clinical trial Written by Michela Luciano, PhD | July 7, 2026 An investigational off-the-shelf, or readily available, CAR T-cell therapy has shown early signs of effectiveness — with clinical improvements and no serious safety concerns — in the first four people with systemic sclerosis
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Understanding Scleroderma and the NDIS with Alex Rosenthal
Posted on
June 29th, 2026
This blog post summarises the key insights from the latest Virtual Education Session (VES) presented by Alex Rosenthal, a branch manager at the engagement and inclusion branch of the National Disability Insurance Agency (NDIA) which runs this NDIS. This engagement and inclusion team are responsible for community engagement, work closely with national disability representative organisations,
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Working with Your Doctor to Optimise Your Health and Well-Being: Insights with Dr Claire Adams
Posted on
June 29th, 2026
Living with scleroderma often means navigating complex medical decisions, multiple specialists, and ongoing treatment choices. For newly diagnosed patients and long-term community members alike, it can feel overwhelming. At our February Virtual Education Session, Dr Claire Adams – psychologist and researcher with the Scleroderma Patient-Centered Intervention Network (SPIN) – shared practical guidance on how to
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Living with Scleroderma: Better Pain Communication, Healthcare Access & Patient Advocacy Insights from Dr Charmaine Jones
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June 29th, 2026
At our June Virtual Education Session, retired palliative medicine physician and patient advocate Dr Charmaine Jones shared expert insights into chronic pain, patient communication, and the importance of shared decision-making for people living with scleroderma and other autoimmune conditions. The session introduced the My Pain Assessment Communication Tool (MPaCT), a patient-designed resource developed to help
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Psychosocial Safety at Work and Scleroderma
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June 9th, 2026
Fay Calderone discussed psychosocial hazards at work, including workplace stress, burnout, fear, lack of support, and their impact on people living with chronic illness and scleroderma.
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How Doctors Predict Scleroderma Progression (And What Patients Should Watch For) Insights from Dr Laura Hummers
Posted on
June 9th, 2026
Dr Laura Hummers shared expert insights into predicting scleroderma progression, including factors such as skin type, specific antibodies, and early symptoms that help guide monitoring and care.
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How to Exercise Safely with Scleroderma
Posted on
June 9th, 2026
Exercise physiologist Dr Stephanie Frade shared practical strategies for people with scleroderma to move safely and confidently, addressing common barriers like fatigue and joint stiffness.
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Genetic links to systemic sclerosis may differ by sex, new study finds
Posted on
May 2nd, 2026
A new study published in The Lancet Rheumatology found genetic links to systemic sclerosis may differ by sex, which could help explain why women are more commonly affected but men often have a more severe disease course.
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Stem cell transplant safely eases scleroderma symptoms for teen
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April 23rd, 2026
A 17-year-old boy with severe scleroderma showed “dramatic” improvement after undergoing autologous stem cell transplant (ASCT), which may represent an important therapeutic option for patients who develop the disease at a young age.
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