Welcome to Scleroderma Queensland
Scleroderma Queensland supports people affected by scleroderma, along with their families, friends and carers, through friendship, education, advocacy and community connection. We raise awareness, share information and support, and raise much-needed funds for research as we work towards better outcomes and, ultimately, a world free from scleroderma.
For almost 40 years, our not-for-profit organisation has brought together individuals, partners, parents, children, carers and warriors to share experiences, stories and practical support. We are a partner of Rare Voices Australia and invite you to join the Scleroderma Queensland community.
Join usWhat we do
Provide support to people with Scleroderma, their families, carers and friends
Promote community awareness of Scleroderma
Support research into better treatments for Scleroderma
What is Scleroderma?
The word ‘Scleroderma’ comes from the two Greek words: ‘sclero’ meaning hard, and ‘derma’ meaning skin.
Learn moreNews
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Nearly half with SSc consider facial cosmetic therapy, survey finds
28/09/2026
Cost and safety were leading barriers among those who did not proceedWritten by Michela Luciano, PhD | Sept. 15, 2026Nearly half of people with systemic sclerosis (SSc) surveyed in…
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Wireless sensor may help track scleroderma skin changes at home
23/09/2026
Five-patient study found measurements rose with standard skin scoresWritten by Lila Levinson, PhD | July 28, 2026Scientists at Northwestern University have developed a wireless sensor that may help…
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Caregivers Survey
21/09/2026
A Swiss University is conducting an anonymous international online survey to better understand the experiences, challenges, and support needs of informal caregivers of people living with systemic sclerosis.The…
